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Video: Bendy Bodies Podcast—The Unfair EDS Journey with Amanda Cassil, PhD

Guest Interview on Bendy Bodies Podcast with Dr. Linda Bluestein, the Hypermobility MD

Episode Overview

In this video podcast episode of The Bendy Bodies Podcast, Dr. Linda Bluestein and I discuss follow-up questions from my talk at the EDS conference in Dublin. We discuss:

  • Unfairness and injustice built into the healthcare system

  • Regulating the nervous system and how this affects your brain

  • Differentiating systemic advocacy (making changes to insurance and healthcare systems broadly) from individual advocacy (getting your needs met when you have a chronic health condition)

  • Using non-judgmental awareness to process how you want to move forward with your care

  • Engaging the grief process, moving toward acceptance while still pushing for better health

  • The value of trauma-informed care at all levels of the healthcare system

  • Responding to sub-optimal medical experiences

  • Balancing grief and gratitude to maintain hope while avoiding toxic positivity

  • How to talk to your doctor about new research that may impact your care